Impressions (March)

Cancer Support Group, Impressions from the Meeting 3/26/15:
Note to first time readers. “Impressions” is simply one person’s take on what happened at the meeting. No particular participant is identified by the subjects or content. This is a self-help group, not therapy, but helpful. Monitored by cancer patient (retired therapist), a primary caregiver of over 3 decades., and a core group of survivors and caregivers who attend for support.

As usual the group concentrated on hearing from new attendees, First Timers, if you will? One struggled through talking about the diagnosis, relating how shocking it was to discover the reoccurrence of cancer after decades of cure - no treatments but routine checkups. Mild symptoms of nothing previously relating to the original diagnosis probably delayed seeking medical examination. But, then, there it was. Even more serious if that was possible. Now in treatment, waiting for results from what has become another journey of uncertainties. The conversation took on the helpful exchange of concerns, caring and faith-filled support. Subtle relief may have settled in after a few minutes as this First Timer seemed more comfortable in discussing the circumstances of this renewed journey. The primary caregiver is there for additional and immediate support as needed. That’s a beautiful thing. Everyone’s hope is that this patient will feel the support from the group. What anyone gets from their first time is critical to his/her returning in the following months.

One meeting each month may not be enough. We are considering adding another meeting, perhaps during the day one weekend/month. We need your feedback on this (contact, see below).

When someone returns months later after his/her first time, the anticipation of an update is palpable. The seriousness of this update, although not shocking, left the group speechless for a few, long seconds. Then, like so many other times before, the gentle ways that each one gave their support again, calmed the situation in a way that welcomed back the patient. As before this patient brought more to the group than he/she might have taken away. The resilience of the human spirit amazes.

You may ask, “Are these meetings always so positive?” Overall, “Yes”. However. There’s always a ‘however’. Meetings are serious, and there is no hesitation in providing help, advice, suggestions, experiences that demonstrate understanding and empathy.

Discussions got around to alternative treatments. So many were worried about patients seeking the magic cure that comes from simply taking supplements that make unrealistic claims. Most, if not everyone there, has been advised by friends, acquaintances, or family, about something they heard or read about. Just take this or that. What we do know is that all of these over the counter, specialty stores, sell literally thousands of products marketed for their ‘magical’ results. However, they are not certified as reliable or even safe by the FDA or any other reputable testing agency. What is in them can vary from pill to pill, capsule to capsule. And, more importantly, even if containing what they claim, the claims may be inaccurate or simply false. The consensus of the Cancer Support Group attendees was that harm can come from delaying competent medical attention, diagnosis and treatment. The question was raised about the pharmaceutical companies conspiring to suppress ‘the cure’ for cancers because of the potential loss of revenue. This myth comes up occasionally. Nurses at the meeting debunked these myths by explaining that the regulatory processes in place ensure the integrity of pharmaceutical companies.

We talked about how important it is that each one of us is confident with our doctors. After diagnosis, its not over. Questions should get answered. Doctors should believe you. Second opinions are almost always warranted. Its your life and the doctors and their staffs stand between you and more serious outcomes. Expect good service. Timely appointments. Offices that can manage your time efficiently. Timely lab and test results, etc. You get what we mean. Don’t’ expect to sit in waiting rooms for hours. Always overcrowded? That’s not right. Sure doctors are busy, but you are the customer. If they schedule too many patients, then at least question whether they can provide the care you expect. Ask others who they see and how they are treated. You may just find answers that you can’t stand, or, better yet, answers that lead to better treatment.

God bless you all. We now know that everyone is touched by cancer in some way. Holy Trinity’s Cancer Support Group is here for you. Questions/comments? Contact: Jim or Jan Ermis, 497-8613/616-1129, email: [email protected].

Next meeting, 4^th Thursday, April 23^rd, Faith Formation Center, 2^nd floor Conference Room.